B-S.B.10: The function of national data portals for infectious disease research
Authors
Nalina Hamsaiyni Venkatesh
SciLifeLab, High Performance Computing Center North, Umeå University
Senthilkumar Panneerselvam
SciLifeLab, Department of Immunology, Genetics and Pathology, Uppsala University
Abdullah Aziz
SciLifeLab, High Performance Computing Center North, Umeå University
Paul Dulaud
SciLifeLab, High Performance Computing Center North, Umeå University
Kazi Jahurul Islam
SciLifeLab, Department of Immunology, Genetics and Pathology, Uppsala University
Hanna Kultima
SciLifeLab, Department of Immunology, Genetics and Pathology, Uppsala University
Johan Rung
SciLifeLab, Department of Immunology, Genetics and Pathology, Uppsala University
Keywords
Pathogens, Data sharing, Web-based, Data Collation, Infectious disease
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National data portals focused on infectious disease efforts have been shown to help to minimise the impact of outbreaks on society. They do this primarily by bringing together and promoting existing research resources (e.g. data and tools). This enables those working in research to quickly locate data and tools that they can reuse, rather than committing time and effort into needlessly recreating resources. National portals can also encourage greater collaboration between research groups, as it is typically easiest to identify potential collaborators on such portals.
Although national infectious disease data portals inherently focus on efforts within a country, their impact need not be localised to that country. In fact, such portals are arguably most effective when they are closely linked with international efforts. This could include, for example, helping to raise awareness of, and adherence to, international standards for data management. This is crucial in enabling data from different efforts to be brought together. National portals can also work together as part of a network to promote pandemic preparedness by ensuring the expedient transfer of information.
Here we intend to describe best practices in establishing and maintaining a national data portal focused on infectious disease research. We will draw on our experience with building and operating the Swedish Pathogens Portal over the last 6 years.
Co-authors: Nalina Hamsaiyni Venkatesh, Senthilkumar Panneerselvam, Abdullah Aziz, Paul Dulaud, Kazi Jahurul Islam, Hanna Kultima, Johan Rung
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